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Nova Terra

~ Just another way of stalling on my other writing

Nova Terra

Tag Archives: stigma

I’s a Fat Lady o’Color. Ain’t That Enough?

07 Tuesday Jul 2015

Posted by lionsofmercy in Blog

≈ 8 Comments

Tags

arthritis, bipolar disorder, knees, mean people suck, mental illness, orthopod, stigma

Well, apparently not. From the Just-Can’t-Win Department:

I just came back from the orthopod, where I was told that the sometimes excruciating pain in my right knee means I most likely have a degenerative tear of my meniscus, which isn’t worth scoping. He also told me that it didn’t matter what the studies said about fat people having a decent outcome for knee replacement, Hospital Protocol said BMI of 40, which for me means losing 45 pounds. End of discussion.

I wasn’t at my best for it even if I did have a shot in Sheepdom, because the PA had put me on the exam table with my head near the door, and thus I had just heard his entire little precis for the attending, which included the words:

“She’s not a good candidate for it no matter what she does–she has a history of bipolar disorder.”

I mean, sheep me. He said WHAT???

Apparently stigma is alive and well in the People’s Republic of Cambridge.  So I came home and wrote the following letter in their MyVoice(tm) email system:

Please make sure Dr. Ortho sees this; I expect a response from him. [These emails are read by the entire team, or can be. Attendings are too important for this sheep.]

Dear Dr. Ortho,

I’m not sure whether or not you realize it, but (having my head right near the door while on the table) I heard every word of what Jerkface said to you before you came in the room: “I don’t think she’d be a good candidate no matter what she did–she has a history of bipolar disorder.” I unfortunately am one of those women who cry when they’re really upset, so I didn’t say anything while I was there. But–I’m REALLY upset.

I’m not sure why my *past* history of BP automatically makes me a bad candidate. I do know, however, that although I’m not a big success at controlling my weight, I kick serious butt in recovering from a major mental illness. Check and see–I haven’t been hospitalized in over seven years, and in fact my job requires me to be in strong recovery.

Jerkface’s remark was ignorant and insensitive. It doesn’t matter that I wasn’t meant to overhear it, it shows that he needs to learn a lot about mental illness. He gives a good shot, but I’d rather he not be involved with my care in the future. I very seriously suggest that your staff have an in-service on mental illness and stigma: NAMI is a great source for such things if you can’t arrange it in-house.

As for my being a poor candidate “no matter what:” I’m fat, not crazy. I’m fat, not incompetent. I’m fat, not lazy. I’m just fat, not some creature without feelings. Just fat.

Please respond.

Most sincerely,
Me

(Ok, I didn’t call him Jerkface.) What surprised me about this was how upset I got. Why should I care what some escapee from an overzealous tanning bed thinks about my mental status, based on a five minute interview and a cursory scan of my chart? It’s not like Dr. Ortho responded with, “Yah, I don’t cut them crazy bitches. We cool.”

Maybe it was the sum of the whole visit, with stigma piled on top of the obligatory medical fat-bash. (Dr. O did say something like, “WELL. It all depends on how important your knees are to you.”) I dunno.

I think I’m going to take the rest of the evening off and have some ice cream. With a potato-chip garnish.

The Private and the Personal

15 Saturday Jun 2013

Posted by lionsofmercy in Blog

≈ Leave a comment

Tags

documentation, homeless shelters, homelessness, names, right to privacy, stigma

About two weeks ago I found a mostly blank book which had a few entries in it from when I was homeless, and I published the first as “Waiting for a Bed,” which talks about my first evening as an individual homeless person with no set shelter residence. (Otherwise known as a bag lady.) I was going to run the other two entries, written from the family shelter my daughter and I moved into shortly afterward, but much of it is riddled with people’s names, and I think that changing them defeats the purpose and negates the entries, as one entry is concerned with the difficulty of learning the names of 15 other moms and their kids. It took a while–I wasn’t good at it.

It wasn’t entirely my fault; it was a historically Latina shelter (Casa Nueva Vida), and my Spanish is rudimentary at best. Two of the women’s names differed by an “s” which wasn’t pronounced in the ambient dialect, so they were called “La Gorda” and “La Flaca,” or “the fat one” and “the skinny one.” What really thrilled me was that these terms were meant to be descriptive, not pejorative–bodies were bodies, and the less Americanized my sisters there were, the less they cared about how much they weighed.

I love Casa; they’re in a corner of the city that’s a minor pain in the ass to get to, or I’d visit more often. They are kind, warm, and caring people who made our seven month stay as comfortable as it might be, given that I shared a single bedroom with my 18-year-old daughter, who spent the last semester of her senior year in deep humiliation and terror that people would find out where she lived. Whereas I became at least a bit politicized there, and ended up serving on the board of Homes for Families, she just wants to push the whole horror out of her mind. (It didn’t help that I needed to go back to the hospital twice for short visits while they tweaked my medication.)

There are many things one can say, and many have said, about the particular horrors of having no room of one’s own–or any room at all. But the very worst part for a homeless introvert was the lack of privacy. Not just the annoyance of having my teenager as a roommate, but the larger sense of privacy rent away by the poverty system.

Everywhere you go, from housing worker to food stamps to Medicaid to this worker to that worker, you carry a folder. It becomes more and more battered with time and being carried about in shopping bags, bulging purses, and the undercarriage of strollers. Inside of it is your life: where you were born and to whom, who you married and when you divorced, the proof of custody of your children, disability attestation from your doctor, your Social Security card, criminal record (though everybody runs it themselves), probate records of name changes, titles of automobiles, bank records, income letters, tax forms, immigration history, the correspondence from all the poverty agencies–and the same set for each child. (If you are ever in this position, here’s a tip: Watch what they do with your original documents. Make sure you get them back after the inevitable photocopies. Not that they mean to steal them, but they don’t have time to care.)

No privacy. Anything not stripped away by opening your folder is shredded away by the inevitable questions: How did you lose your housing? Do you have anybody else to stay with? Where did you stay last night? What’s wrong with you anyway, you lazy loser bitch? 

And they mangle your name. (At least if it’s mine.) Sometimes it’s all we have left, that name-meaning-us, as opposed to the word which appears all through that folder, being misspelled, mispronounced, and sometimes misassigned. The private made public, the personal impersonal.

So I can’t take away the names of my sisters from Casa; it took me too long to earn them.

Nova Terra

just another way of stalling on my other writing

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